Halvard RamstadWhy it’s important for patients to own their own health data
In the current healthcare environment, people have their healthcare documents fragmented across 16 different providers on average, such as EMRs, hospitals, private clinics, biobanks, and many more. With an increasing amount of data points scattered across different channels it becomes harder than ever to aggregate and understand the disintegrated data.
Hence, patient empowerment is becoming increasingly important, and a crucial aspect of this is patients owning their own health data. This goes beyond mere access; it fundamentally transforms the healthcare experience and outcomes for patients.
Better health ownership improves health outcomes
When patients have access to their health records, including clinical notes, test results, and medication histories, they gain a deeper understanding of their health conditions. This transparency enhances health literacy, allowing patients to make informed decisions about their care and lifestyle.
Research shows that patients who access their health data are more engaged in managing chronic conditions, adhering to treatment plans, and maintaining healthier lifestyles.
Increasing Health Literacy and Self-Management
Having access to their health records, including clinical notes, test results, and medication histories, helps patients understand their health conditions better. This transparency improves health literacy, enabling patients to make informed decisions about their care and lifestyle.Research shows that patients who have access to their health data are more proactive in managing chronic conditions, adhering to treatment plans, and maintaining healthier lifestyles.
Improving Communication and Trust
Transparent access to health records leads to better communication between patients and healthcare providers. Patients can review the information discussed during consultations, which helps them prepare better for future appointments and engage in more meaningful conversations with their doctors. This openness builds trust, as patients feel more involved and respected in their care processes.
Ensuring Continuity of Care
For patients who see multiple healthcare providers, owning their health data is crucial. It ensures that all providers have access to the same information, reducing the risk of errors and ensuring continuity of care. This is especially important for patients with complex health conditions who require coordinated care from various specialists.
Empowering Patient Advocacy and Autonomy
When patients have access to their health data, they are better equipped to advocate for themselves. They can seek second opinions, verify the accuracy of their medical records, and make autonomous decisions about their treatment options. This empowerment leads to greater satisfaction with the healthcare system and improved health outcomes.
Promoting Equity and Addressing Disparities
Access to health data can help address health disparities by providing underserved populations with the information they need to manage their health more effectively. Ensuring that all patients, regardless of socioeconomic status, have access to their health records is a step toward equitable healthcare, reducing the digital divide and enabling all patients to benefit from the digital transformation in health.
In summary, owning health data is a transformative shift in healthcare that empowers individuals, enhances communication, and improves care coordination. It is a critical component of modern healthcare that supports better outcomes and a more patient-centered approach.